April 9, 2017
A lot has been going on. We're planning to take time off to go to the desert.
Tim saw his UCSF oncologist earlier this week. The oncologist and his team were somewhat shocked that Tim hadn't had a break from chemo in over a year and a half. So, they recommended Tim continue to take time off. He's been off chemo now . . .
March 29, 2017
After meeting with Paul's oncologist, some things got clarified. His cancer isn't relapsing yet, but the drug he was on is no longer effective and new chemo treatments are beginning. Paul will start on a new combination of chemo drugs that should make his bone marrow cells more cancer-free so he can go ahead with a stem cell . . .
March 22, 2017
This has been a fairly rough time for us. It looks like Tim won’t qualify for the chemo trial because the location of his tumor prevents getting a large biopsy that’s needed for the study. They can only do a small needle biopsy, and that’s not good enough to qualify for the study. The only remaining option is to start on an older chemo which . . .
March 13, 2017
We haven't done much posting lately as we’ve had a pretty full schedule.
Paul had several procedures done over the past two weeks (bone marrow biopsy, echocardiogram, pulmonary function test, PET scan, and various blood and other lab tests) in preparation for his bone marrow harvesting at Stanford later this month. That will . . .
February 27, 2017
Tim’s cancer lab results weren’t what we had hoped for. His PET scan today showed that his cancer has progressed. Tim was hoping for a respite from the serious side effects of his chemo if the results were good. We'll discuss options with Tim's oncologist in a couple weeks.
Meanwhile, Paul is preparing for several procedures . . .
February 3, 217
One big change in our lives. As of February 1, Paul has retired as Associate Director of Through the Looking Glass and Co-Director of the National Center for Parents with Disabilities and their Families. It was a combination of our health issues, trying to limit exposure to others since our immune systems are fairly compromised, and the . . .
January 12, 1017
Belated Happy New Year. While we’re so grateful to be able to see 2017 (especially for Tim), it was a somewhat rocky few early weeks over the holidays. We both had some ups and downs with our chemo and side-effects. Nothing too dramatic, but let’s say we spent a lot of time close to the bathroom.
We had a wonderful visit with Paul’ . . .
